Public and patient involvement in health data governance (DATAGov): protocol of a people-centred, mixed-methods study on data use and sharing for rare diseases care and research

Public and patient involvement in health data governance (DATAGov): protocol of a people-centred, mixed-methods study on data use and sharing for rare diseases care and research

Worldwide coverage imperatives for the general public and affected person involvement within the governance of well being knowledge coexist with conflicting cross-border insurance policies on knowledge sharing. This could problem the planning and implementation of participatory knowledge governance in healthcare companies regionally. Partaking with native stakeholders and understanding how their wants, values and preferences for … Read more